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Task Forces

Reimbursement

Objective To lobby and draft memoranda in order to improve reimbursement and management strategies for neurological and psychiatric patients.
Action 2008-2009 Targeted interventions; liaison with "COD" task force.
Participants
  • P. Boon: Subspecialities - Epilepsy V Coordinator
  • S. Henry: Patients' associations - Alzheimer Ligue Coordinator
  • B. Dan: Pediatric Neurology
  • D. Thiery: Pharmaceutical industry - GSK
  • G. Defraigne: Pharmaceutical industry - Lundbeck

Brain Research Funds

Objective Collect data on the budgets allocated for brain research by the public institutions (FNRS, FWO, Belgian Universities), by patients' associations and scientific societies, and by pharmaceutical companies.
Action 2008-2009 Collect data.(See report)
Participants
  • S. Schiffmann: BSNeuroscience Coordinator
  • L. Leybaert: BSNeuroscience Coordinator
  • A. Goffinet: BSNeuroscience
  • R. Vogels: BSNeuroscience
  • A. Michotte: B Neurological Society
  • K. Vonck: B Neurological Society
  • T. Grisar: Subspecialities - Epilepsy F
  • M. Mormal: Patients' associations - Alzheimer Belgique
  • C. Tihon: Patients' associations - Ligue Nationale Belge de la Sclérose en Plaques

Cross-fertilisation

Objective Discuss and propose common activities and projects between clinicians of different specialities and basic neuroscientists.
Action 2008-2009 Organize "cross-fertilizing" workshop; liaise with NeuroBelgium2006 SPC
Participants
  • S. Schiffmann: BSNeuroscience
  • R. Vogels: BSNeuroscience
  • K. Vonck: B Neurological Society Coordinator
  • PP. De Deyn: Vlaamse Vereniging voor Neurologie Coordinator
  • J. Peuskens: Vlaamse Vereniging voor Psychiatrie Coordinator
  • H. Boon: SRMMB Coordinator
  • F. Van Calenbergh: Neurosurgery
  • M. Gonce: Subspecialities - CMA
  • P. Cras: Subspecialities - Neuropatho
  • T. Grisar: Subspecialities - Epilepsy F

Brain Awareness Week

Objective Prepare and organize the activities of the 2009 brain awareness week in cooperation with EDAB and Scité.
Action 2008-2009 Prepare BAW of March 2009.
Participants
  • J. Schoenen: B Neurological Society
  • PP. De Deyn: Vlaamse Vereniging voor Neurologie Coordinator
  • C. Bervoets: BCNBP
  • P. Boon: Subspecialities - Epilepsy V
  • Dr Gianni FRANCO: E.p.l.C.-ANEIDE
  • PO. Van den Bergh: Subspecialities -
    Clin Neurophysiology Coordinator
  • R. Pochet: EDAB Coordinator

Cost of diseases

Objective To obtain in cooperation with the patients' organization the typical cost profile for a representative patient in each major neurological and psychiatric disorders; these "standard" profiles will be compared to the results of ongoing large-scale cost of disease and pharmaco-economic studies.
Action 2008-2009 Establish the cost profile for a typical Belgian patient for each major neurological and psychiatric disorder and compare with the global "cost of disorders of the brain in europe" published in Eur J Neurol 12,Suppl 1, 2005.
Participants
  • J. Scuvée-Moreau: BCNBP
  • M. Mormal: Patients' associations - Alzheimer Belgique
  • C. Tihon: Patients' associations - Ligue Nationale Belge de la Sclérose en Plaques
  • G. Franco: E.p.l.C.-ANEIDE Coordinator
  • R. Van Aelst: Pharmaceutical industry - Janssen Cilag
  • G. Defraigne: Pharmaceutical industry - Lundbeck

Belgian Brain Congress 2009

Objective Prepare the next biennal Congress.
Action 2008-2009 Finalize the program of BBC2009.
Participants

Ethics

Objective Members to be defined give advice on ethical issues.
Participants
  • P. Cras: Subspecialities - Neuropatho Coordinator
  • R. Pochet: EDAB

Communications

Objectifs Identifier les activités communes et spécifiques du BBC et des Associations de patients membres du BBC.
Définir le public cible
Définir une feuille de route ou 'Roadmap'
Action 2008-2009 Mise en action de la méthodologie choisie pour atteindre le public cible.
Répartition des tâches
Participants
  • Charles van der Straten:
    Patient's association-Sclérose en plaques Coordinator
  • Jean Schoenen: Belgian Neurological Society
  • Roland Pochet: EDAB
  • Damien THIERY: Pharmaceutical Industry, GSK
  • Gianni Franco: E.p.l.C.-ANEIDE