Belgian Brain Council

De Council

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Meetings

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Archiefs

Task Forces

Reimbursement

Doelstellingen	Gemeenschappelijke en specifieke aktiviteiten van BBC en van Patiëntenorganisaties die er lid van zijn, identificeren. Een werkwijze of "roadmap" vastleggen
Aktie 2008-2009	Bewerkstelliging van de methodologie om de diverse doelgroepen te bereiken
Taakverdeling	P. Boon: Subspecialities - Epilepsy V Coordinator S. Henry: Patients' associations - Alzheimer Ligue Coordinator B. Dan: Pediatric Neurology D. Thiery: Pharmaceutical industry - GSK G. Defraigne: Pharmaceutical industry - Lundbeck

Brain Research Funds

Objective	Collect data on the budgets allocated for brain research by the public institutions (FNRS, FWO, Belgian Universities), by patients' associations and scientific societies, and by pharmaceutical companies.
Action 2008-2009	Collect data.(See report)
Participants	S. Schiffmann: BSNeuroscience Coordinator L. Leybaert: BSNeuroscience Coordinator A. Goffinet: BSNeuroscience R. Vogels: BSNeuroscience A. Michotte: B Neurological Society K. Vonck: B Neurological Society T. Grisar: Subspecialities - Epilepsy F M. Mormal: Patients' associations - Alzheimer Belgique C. Tihon: Patients' associations - Ligue Nationale Belge de la Sclérose en Plaques

Cross-fertilisation

Objective	Discuss and propose common activities and projects between clinicians of different specialities and basic neuroscientists.
Action 2008-2009	Organize "cross-fertilizing" workshop; liaise with NeuroBelgium2006 SPC
Participants	S. Schiffmann: BSNeuroscience R. Vogels: BSNeuroscience K. Vonck: B Neurological Society Coordinator PP. De Deyn: Vlaamse Vereniging voor Neurologie Coordinator J. Peuskens: Vlaamse Vereniging voor Psychiatrie Coordinator H. Boon: SRMMB Coordinator F. Van Calenbergh: Neurosurgery M. Gonce: Subspecialities - CMA P. Cras: Subspecialities - Neuropatho T. Grisar: Subspecialities - Epilepsy F

Brain Awareness Week

Objective	Prepare and organize the activities of the 2009 brain awareness week in cooperation with EDAB and Scité.
Action 2008-2009	Prepare BAW of March 2009.
Participants	J. Schoenen: B Neurological Society PP. De Deyn: Vlaamse Vereniging voor Neurologie Coordinator C. Bervoets: BCNBP P. Boon: Subspecialities - Epilepsy V Dr Gianni FRANCO: EplC-ANEIDE PO. Van den Bergh: Subspecialities - Clin Neurophysiology Coordinator R. Pochet: EDAB Coordinator

Cost of diseases

Objective	To obtain in cooperation with the patients' organization the typical cost profile for a representative patient in each major neurological and psychiatric disorders; these "standard" profiles will be compared to the results of ongoing large-scale cost of disease and pharmaco-economic studies.
Action 2008-2009	Establish the cost profile for a typical Belgian patient for each major neurological and psychiatric disorder and compare with the global "cost of disorders of the brain in europe" published in Eur J Neurol 12,Suppl 1, 2005.
Participants	J. Scuvée-Moreau: BCNBP M. Mormal: Patients' associations - Alzheimer Belgique C. Tihon: Patients' associations - Ligue Nationale Belge de la Sclérose en Plaques G. Franco: EplC-ANEIDE Coordinator R. Van Aelst: Pharmaceutical industry - Janssen Cilag G. Defraigne: Pharmaceutical industry - Lundbeck

Belgian Brain Congress 2009

Objective	Prepare the next biennal Congress.
Action 2008-2009	Finalize the program of BBC2009.
Participants

Ethics

Objective	Members to be defined give advice on ethical issues.
Participants	P. Cras: Subspecialities - Neuropatho Coordinator R. Pochet: EDAB

Communications

Objective	Identify common and specific targets and activities of the BBC and its member Patients' Associations. Define the target audiences. Design a road map
Action 2008-2009	Methodological assessment for mapping the target. Task divisions
Participants	Charles van der Straten: Patient's association-Sclérose en plaques Coordinator Jean Schoenen: Belgian Neurological Society Roland Pochet: EDAB Damien THIERY: Pharmaceutical Industry, GSK Gianni Franco: EplC-ANEIDE